Archive for the ‘Uncategorized’ Category

Wheelchair Art Project

Wednesday, May 4th, 2016

We are very excited to be working with Remap and The Process on the development of an accessory enabling our wheelchair users to get fully involved in creating art.

Although the product is still in development Centre user Barry has already been able to produce some art from his wheelchair using a prototype of the new equipment.

Here is some video footage provided by The Process showing how the project is coming together.

Happy Christmas

Thursday, December 24th, 2015

Sussex MS Treatment Centre Happy Christmas

Wishing all our members and volunteers a wonderful Christmas and a very Happy New Year.

We open again on Monday 4 January. See you then!

 

 

AOH Preview Evening

Wednesday, November 25th, 2015

We are very fortunate to be the chosen charity for Sainsbury’s West Hove this year and on Friday 20th Nov, as part of Brighton and Hove’s Christmas Open Houses, we held a Private View of our art exhibition in the restaurant at Sainsbury’s West Hove.  The exhibition will run for a month and Friday was a chance for invited guests and members to be the first to view the art.

Half of the artwork was made by members during our Art for All day in October and half of it was kindly donated by friends and family of The Centre.  The exhibition was beautifully hung and arranged by Hilary, who worked tirelessly to bring it about.  Somebody else who worked tirelessly was Jill who made a wonderful selection of canapes for the evening.  We felt quite the artists, enjoying the artwork and nibbling on canapes.  It really was most civilised.

We were delighted that Sara McLafferty from Remap, a charity that custom-makes adaptations for disabled people, was one of the guests.  She was able to talk with members about our current project to make a piece of equipment for wheelchairs that will act as a giant paintbrush.

Again, we had excellent support from Sainsbury’s themselves and the store manager, Mick Ingledew, was incredibly enthusiastic about the project.

In terms of selling the art, a silent auction will be held at the end of the exhibition and this will raise valuable funds for the Centre.  A couple of members have already put their bids in the box – for the same pieces of art!  Hopefully there won’t be too much in-fighting!

The exhibition runs until 13 December so do pop along and enjoy the art and a coffee in the restaurant and ease the experience of your weekly shop.

You can view the full AOH Christmas brochure here.

Describing more work to Mick at Sainsbury's West Hove

Chatter and delicious canapes - AOH preview evening

Group shot at Sussex MS Treatment Centre AOH preview evening

AOH Christmas 2015 - Sussex MS Treatment Centre Bidding box and how to bid

New Therapist

Tuesday, July 21st, 2015

Catarina Campos - Biodynamic Massage TherapyWe have a new therapist starting at the Sussex MS Treatment Centre this August. Catarina will be joining us from the middle of August and will offer our members biodynamic massage sessions on a Wednesday.

If you would like to find out more about the benefits of biodynamic massage and how a session works then Catarina has provided us with an information sheet which you can read here or download.

As with all our therapies you can book a session either by phoning us or speaking to reception when you are next in the Centre.

Sclerosis Sailing

Thursday, May 21st, 2015

Oceans of Hope - Sailing Sclerosis. Sussex MS Treatment CentreRobert Munns, who was recently diagnosed with MS, had the chance to sail between the Galapagos Islands with Sailing Sclerosis and has kindly agreed to tell us all about his great experiences on board.

A little about sailing sclerosis for you.

Navigating the world’s expansive oceans is still a great challenge. However, the technological evolution of boats and navigational aids as well as communicational equipment has made this kind of journey safer than ever.

We want to tell the world that disability can be changed to ability, that we will never stop trying to improve life. We want to create quality of life and value through responsibility and commitment. Sailing around the world is just that, it is hard work, commitment and dependency upon each other working as a team.

We will show everyone that we live our lives to the fullest and that dreams can come true, in spite of having a serious disease. We’ll be saying, “Yes, we can still do it!”

Between 2004 and 2010 I was skipper on board ‘ Big Smile’ extensively cruising the Mediterranean Sea. During this time i was very rarely 50 miles offshore, so the thought of being 1500 miles offshore with Oceans of Hope us both very exciting and scary!

The timing of Oceans Of Hope coming into my life was perfect. The team turned up at Brighton Marina on a fact finding visit. i was on duty as Marina Manager that day and was immediately inspired. Now, eight months after that first meeting I have just given up work to be part of Oceans Of Hope’s adventure.

I was lucky enough to be invited to join the boats circumnavigation between the Galapagos Islands and Tahiti. This was to become a 4000 Nautical Mile adventure that I would never forget.

Sailing Sclerosis has re ignited a passion for adventure and new experiences that had been quashed since my first episode and subsequent diagnosis. Life is too short to be paralysed by the uncertainty that comes with MS. Oceans of Hope has given me the inspiration and belief that anything is possible again.

Since I visited the boat in Portsmouth I have really changed my attitude to life again. It’s an opportunity for expanding outside of my comfort zone once more. Since my last year as skipper of MY Big Smile, I’ve not really been the confident Robert that I used to be. It’s been a real boost to have this goal to look forward to and plan for. For those of you reading this blog that know me, planning for things is not my strongest attribute.

Since having made my mind up last year, I have been more relaxed with life and happier to make decisions. One of these decisions was to go and get another MRI scan to see how my brain was doing. Since seeing the additional scars/lesions I realised life is far too short to waste time NOT crossing the road for fear of being knocked down. I now appreciate how paralysing this state of mind can be. It’s very simple… I can walk, I can talk, I can jump and I can swim. Most importantly, I can still swing a golf club!!!

Since having this goal of being with OoH, I’ve realised how my family and friends have watched me succeed and fail at life, love and all the other stuff too. For these highs and lows, they have always been there for me. This was most apparent when I had my attack in 2008. I do not know where I would be if they weren’t there for support, comfort, strength or just to make me laugh when I thought I could not.

Having this opportunity is amazing for me and is unbelievably timely. I have given up my job for this and have no idea where my path will lead afterwards.

So… Live the day today, tomorrow will come soon enough:  Catch the fish, cook the fish, eat the fish.

During the early stages of our journey from the Galapagos, I have been very fortunate to hear everyone’s own personal stories, not just when they were diagnosed, but how their lives have brought them to this point.

On board, without the pressure of commerce or time or personal commitments, we have had the time to listen to each other and ask questions. To learn, to be patient and empathise with others who at some point I will have to rely on.

Getting back into the swing of being on a boat is giving me great pleasure and strength. I do not want to sit around doing nothing. I want to make food for people, talk and joke with people and make my time here even more important. If this manifests as fantastic memories or simply just making the most out of every hour and going to sleep knowing that I have achieved what I could during that day, then so be it.

However, I am angry with myself. From 2008, I have not really been my whole self.  As I mentioned before, the results of inactivity are: no memories, no sleep and the awful feeling that life is no longer in my control. Like someone who has broken down on the side of the motorway in the rain, helplessly watching others whizz by, carrying on with their lives. People who still have some kind of control in their lives, going on journeys, going to work, travelling to meet loved ones etc. Looking back on it, I’ve kind of been feeling that way.

Is this time away from home the time to be angry with myself for not seeing this and not totally accepting it? Get it out of my system? Or just to put that in a box, close the lid and forget about it?

Who knows, either way it is time to properly look to a future, not to the past.

Time to dream of new dreams, not to dwell on reasons why I should not.

 

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Happy Easter

Thursday, April 17th, 2014

Don’t forget we are closed over the Easter bank holiday so we wont be here tomorrow Friday the 18th or on Monday the 21st.

Owls – Out and About

Thursday, March 13th, 2014

Come and join us for Owls out and about, fundraising for the Centre in April!

Can you come to Sainsbury’s Supermarket West Hove and volunteer for a couple of hours collecting funds for the MS Centre, with the lovely Owls and people from Owls out and about?

Sign up to do a one or two hour slot of collecting for the centre at our Owls out and about day.

Plus we’ll have an Easter tombola with loads of East Egg Prizes supplied by Sainsbury’s West Hove.

It’s a fun day of fundraising and getting to meet the Owls. Feel free to just pop along for a visit and to invite friends or family down to meet and hold the Owls on the day.

Call the centre on 01273 594 484 for more information or to sign up to volunteer for an hour or two on the day.

Community Matters

Monday, February 10th, 2014

John Lewis collection

Nikki, Wendy and Jo, recently attended the John Lewis at Home Store in Chichester to receive a cheque for £961.00, which had been collected through the fantastic Community Matters Scheme,  which funds for local community charities and organisations.

The Store decided to fundraise for the centre, after they had been contacted by Jeanette Jones asking them to donate a raffle prize for the MS Centre Christmas Fair.  Although they couldn’t give the centre a raffle prize, the letter sent by Jeanette inspired the store to choose the Centre, as one of the Charities to be picked for the Community Matters Scheme.

On the day Wendy, Nikki and Jo went to meet the store staff to thank them for their fundraising and promotion of the Centre and to let them know how we could use the money they have risen to help fund our services.

An article about the MS Centre and the funds raised from the Community Matters scheme at Chichester will even be featured, in the John Lewis in store magazine called John Lewis Editions.

Hairdresser now available on Mondays at the Sussex MS Treatment Centre

Tuesday, January 14th, 2014

Mobile Hairdresser Caroline will be  attending the centre once a month on Mondays to provide Hair Cuts.

images (1)

Caroline will be available from Monday the 27th of January.

Appointments will be available between 10.00am and 2.00pm and the charge for a hair cut will be £15.00.

Book at reception for an appointment or call on 01273 594484.

 

Dates when the Centre is closed for Christmas and New Year

Thursday, December 19th, 2013

 

front door snow

 

 

Don’t forget that the Centre closes over Christmas and New Years, we will be shut between the 24th of December 2013 and the 1st of January2014. We will open again on the 2nd of January 2014.

Thanks to everyone for all your support of the MS Centre through out 2013.

Wishing you all happy festivities and a great new year.